File:A woman and her grandson with a developmental disability.jpg

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An elderly woman is the primary caregiver of her young grandson that is affected by a developmental disability

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English: In South Africa, many children with neurological disorders, such as cerebral palsy and other developmental disabilities, are born into households living in poverty. There are very few day-care or educational facilities for children with special needs, and even fewer that are affordable to the poor. Most of these children require full time care for as long as they live. The burden of care therefore most often falls on the mother or on a close family member such as a grandmother. Care is passed on to a relative to enable the mother to find work, because she passed away, or because she simply could no longer cope with the demands of caring for a child with a severe disability. Grandparents often have the added burden of personal health problems which makes caring for a child with special needs exceedingly difficult.

Full time care of a child makes it impossible for the caregiver to work. Families usually rely mostly on the Government disability grant which in 2021/2022 = ZAR 1890 (approximately US$ 125) per month. Caregivers lead a very isolated existence. They are often refused access to public transport if the child is in a mobility device such as a buggy or wheelchair. Medical and rehabilitation services are limited, offered sporadically and difficult to access. Many caregivers have a limited understanding of the child’s condition and how to best help them. Few children are toilet trained and need expensive nappies for years beyond the usual time for a child to be taken off nappies.

Many caregivers are therefore in great psychological distress and enduring emotional suffering because of the difficult circumstances they must cope with daily, without an adequate support system.
This is an image with the theme "Health and Wellness in Africa" from:
South Africa


Igbo: Na South Africa, ọtụtụ ụmụaka nwere nsogbu akwara ozi, dị ka ọrịa ụbụrụ ụbụrụ na nkwarụ mmepe ndị ọzọ, ka a mụrụ n'ezinụlọ ndị dara ogbenye. Enwere ụlọ nlekọta ụbọchị ma ọ bụ ụlọ akwụkwọ mmụta maka ụmụaka nwere mkpa pụrụ iche, na ọbụna ole na ole nke ndị ogbenye na-akwụ ụgwọ. Ọtụtụ n'ime ụmụaka ndị a chọrọ nlekọta oge niile ogologo oge ha dị ndụ. Ya mere ibu nlekọta na-adakwasị nne ma ọ bụ onye ezinaụlọ ya dịka nne nne. A na-enye onye ikwu ya nlekọta iji mee ka nne ya nwee ike ịchọta ọrụ, n'ihi na ọ nwụrụ, ma ọ bụ n'ihi na ọ nweghịzi ike ịnagide ihe a chọrọ nke ilekọta nwatakịrị nwere nnukwu nkwarụ. Ndị nne na nna ochie na-enwekarị ibu arọ nke nsogbu ahụike nke onwe nke na-eme ka ilekọta nwatakịrị nwere mkpa pụrụ iche sie ike nke ukwuu.
Nlekọta oge zuru oke nke nwatakịrị na-eme ka onye na-elekọta ya ghara ịrụ ọrụ.  Ezinụlọ na-adaberekarị na onyinye nkwarụ gọọmentị nke na 2021/2022 = ZAR 1890 (ihe dị ka US$ 125) kwa ọnwa.  Ndị na-elekọta mmadụ na-ebi ndụ dịpụrụ adịpụ.  A na-ajụkarị ha ịbanye n'ụgbọ njem ọha ma ọ bụrụ na nwatakịrị nọ n'ihe eji agagharị agagharị dịka ụgbọ ala ma ọ bụ oche nkwagharị.  Ọrụ ahụike na nrụzigharị nwere oke, a na-enye ya oge ụfọdụ na ọ siri ike ịnweta.  Ọtụtụ ndị na-elekọta ya nwere obere nghọta maka ọnọdụ nwatakịrị ahụ yana otu esi enyere ha aka kacha mma.  Ụmụntakịrị ole na ole a zụrụ ụlọ mposi ma na-achọ akwa nhicha dị oke ọnụ ruo ọtụtụ afọ karịa oge a na-adịbu maka nwata ka a na-ewepụ ya.
Ya mere, ọtụtụ ndị na-elekọta ndị na-elekọta mmadụ nọ n'oké nhụjuanya nke uche na nhụjuanya mmetụta uche n'ihi ọnọdụ ndị siri ike ha ga-anagide kwa ụbọchị, na-enweghị usoro nkwado zuru oke.
Date
Source Own work
Author AnikaMeyer

This image was taken during a respite and caregiver-training camp, for caregivers and children with disabilities (pre Covid-19) organized by a NPO working with poor families in the Eastern Cape province of South Africa. At present this province has one of the worst public health care systems in the country.

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